The Roses Speak: A Chronic Illness Journey
Drawing primarily on the experiences of those with cystic fibrosis (CF), it unites the voices of over 100 people across ten countries. This book contributes to unity across cultures and emphasizes the inherent human dignity of those with a chronic illness. While focusing on relationships and creating dialogue, The Roses Speak also advocates for continued medical research. The revolutionary gene modulator medication, Trikafta, has ameliorated the lives of many people with CF, yet comes at a cost of $25,000 per month, raising ethical questions of accessibility. Researchers hope that CF is the first of many currently incurable conditions that can be treated through gene modulators.
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Drawing primarily on the experiences of those with cystic fibrosis (CF), it unites the voices of over 100 people across ten countries. This book contributes to unity across cultures and emphasizes the inherent human dignity of those with a chronic illness. While focusing on relationships and creating dialogue, The Roses Speak also advocates for continued medical research. The revolutionary gene modulator medication, Trikafta, has ameliorated the lives of many people with CF, yet comes at a cost of $25,000 per month, raising ethical questions of accessibility. Researchers hope that CF is the first of many currently incurable conditions that can be treated through gene modulators.
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